About
News
Events
Contact
PODCAST
Store

Advanced Search

for Patients and Families
for Patient Organizations
for Clinicians and Researchers
NORD Rare Disease Advocacy
Get Involved

Home / Membership Resources

NORD Member Resources

This page is specifically for resources related to NORD Member Qualifications. For additional resources, including COVID19-related work and RareLaunch Research Ready and Forming a Foundation guides, please visit their sections on our website. For members-only webinar recordings, including videos on diversity, equity and inclusion, please email [email protected].

Filter Resouces

Board Electoral Process and Term Limits Language Template

Bylaws General Nonprofit Structure Template

Confidentiality Policy Template

Governance Recommendations for Member Organizations

Guidelines for Medically-Vetted Information

Medical Advisory Board Member Agreement Template

Medical Advisory Board Policies and Procedures Template

Medical Advisory Board Tip Sheet

Operating Budget Template

Policy on Actual and Potential Conflicts of Interest Template

This form is specifically for resources related to NORD Member Qualifications. For additional resources, including COVID19-related work and RareLaunch Research Ready and Forming a Foundation guides, please visit their sections on our website. For members-only webinar recordings, including videos on diversity, equity and inclusion, please email [email protected]

Name(Required)

First Last

Email(Required)

Work/Mobile Phone

Organization(Required)

Title(Required)

NORD has resources for the topics listed below. Which governance areas would you like to receive guidance from NORD?(Required)

Bylaws

Medical Advisory Board

Medically-Vetted Information

Conflict of Interest policy

Privacy policy

Financial Transparency

Other

What resources would you like NORD to develop?

Board diversity

Board transparency

Board recruitment/succession

Other

If other, please explain

If other, please explain

Δ

Alone we are rare. Together we are strong.®

For Patients and Families
For Clinicians and Researchers
For Patient Organizations
Advocate
Get Involved

Home
About
News
Events
Contact
Careers
Brand Usage Guidelines

Sign Up for NORD News!

Follow NORD

Site Map
Website Credits
Privacy

Copyright ©2021 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.