Orphan Drug Act Archives - Page 10 of 10 - NORD (National Organization for Rare Disorders)

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Archives for: October 23rd, 2013

30 Years After the Orphan Drug Act: It Still Takes Too Long for People with Rare Diseases to Get an Accurate Diagnosis

Written by Mary Dunkle on October 23, 2013

NORD recently posted the following question on its Facebook page: How long did it take you or a loved one to get an accurate diagnosis?

We were stunned at the response. Within the first few hours, we got 200 replies and 20% of those who responded had… Read More

NORD Issues Statement on the Death of Actor Jack Klugman

Written by Mary Dunkle on December 25, 2012

Jack Klugman touched the lives of millions of Americans through his support for what ultimately became the Orphan Drug Act. By portraying on his Quincy, M.E. television show the plight of people with rare diseases with no treatment, Mr. Klugman focused a spotlight on the need for incentives to encourage… Read More

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