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X-WR-CALNAME:NORD (National Organization for Rare Disorders)
X-ORIGINAL-URL:https://rarediseases.org
X-WR-CALDESC:Events for NORD (National Organization for Rare Disorders)
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
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DTSTART:20221106T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220426T080000
DTEND;TZID=America/New_York:20220426T181500
DTSTAMP:20220526T045619
CREATED:20220309T165236Z
LAST-MODIFIED:20220309T165236Z
UID:84293-1650960000-1650996900@rarediseases.org
SUMMARY:Rare Cancers: Great Unmet Medical Needs
DESCRIPTION:At least 1 in 8 cancers diagnosed in adults are considered by definition “rare cancers.” By definition rare cancers are ones with a prevalence of < 200\,000 cases per year in the United States. This means that well over 200\,000 patients are diagnosed with rare cancers each year in this country. In fact if one excludes the most common types of cancers such as breast\, lung\, colon and prostate cancer the remaining cancers are particularly rare and this number is much higher. In fact it could represent up to a third of all cancers diagnosed each year. Therefore\, “rare cancers” represents a major health care problem in the United States and around the world. The symposium is designed to focus on specific types of rare cancers and to understand the latest advances in cancer medicine that apply to them. \nEvent Contact Information:\nColumbiaCME\ncme@columbia.edu
URL:https://rarediseases.org/event/rare-cancers-great-unmet-medical-needs/
LOCATION:IL
CATEGORIES:For Clinicians and Researchers,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220429T083000
DTEND;TZID=America/New_York:20220430T183000
DTSTAMP:20220526T045619
CREATED:20211123T150520Z
LAST-MODIFIED:20211123T150520Z
UID:81715-1651221000-1651343400@rarediseases.org
SUMMARY:11th UCG Edition on Pharmaceuticals & Pharmacy Networking Conferences
DESCRIPTION:Greetings. We are organising the 11th Global Pharmaceuticals & Pharmacy Networking Conferences on April 29-30\, 2022 in Dubai\, UAE & Online. The Pharma Conference revolves around the theme – “Discover the World of Pharmaceuticals.” \nThe Utilitarian Conferences Gathering OCM would like to invite Pharmacists\, experts\, professors\, students\, practitioners\, medical specialists\, clinical scientists\, technologists and other healthcare professionals to the Pharmaceuticals Utilitarian Conference.\nOur main aim is to bring leading researchers\, scientists\, and research scholars researchers to exchange\, discuss and share their experiences and research results about all aspects of Pharmaceuticals. This Conference aims to provide participants working in Pharmaceuticals medicine with a venue in maintaining cutting-edge knowledge and skills in their fields including Pharmacology\, Pharmaceutical Sciences\, Pharmaceutical Biotechnology\, Smart Drug Delivery Systems\, Pharmaceutical Engineering\, Pharmacognosy\, Digital Pharma\, Clinical Pharmacy\, Pharmaceutical Analysis\, Pharmaceutical Chemistry\, Pharmaceutical Formulations\, Pharmaceutical Regulatory Science and other disciplines.\nWe look forward to making the Conference not only a learning opportunity but also offer a destination where you can enjoy and unwind yourself before you start your work.  By attending the Pharma conference\, you will have the chance to grow both career-wise and relation wise. Your presence will be much appreciated.\nPharmaceuticals 2022 is the best chance to build a network with scientists\, researchers\, pharmacologists\, Experts\, Practitioners\, academicians\, professors and students from across the world and discuss best practices\, share the vision of therapeutics and the latest trends and innovations in the world pharmaceuticals\, opportunities and challenges.\nThe Pharmaceuticals & Pharmacy Networking Utilitarian Conference Gathering will have plenary sessions\, workshops\, a symposium to discuss and share the importance of drugs and their effects on human physiology.\nConference Highlights are Pharmacology\, Pharmaceutical Sciences\, Pharmaceutical Biotechnology\, Smart Drug Delivery Systems\, Vaccine\, Pharmaceutical Engineering\, Quality Assurance\, Pharmacognosy\, Digital Pharma\, Medico Marketing\, R&D Advancement: Road to New Medicines\, Clinical Pharmacy\, Pathophysiology\, Pharmaceutical Microbiology\, Computer Applications in Pharmacy\, Pharmacy Practice\, Pharmaceutical Analysis\, Pharmaceutical Chemistry\, Pharmaceutical Formulations\, Pharmaceutical Regulatory Science\, Drug Regulations\, Pharmaceutics\, Industrial Pharmacy\, Pharmacy Development Services\, Drug Delivery Technologies\, Pharmacy Development Services\, Biopharmaceuticals\nHurry up plan your trip to Dubai\, UAE \nImportant Information: \n11th UCG Edition on Pharmaceuticals &Pharmacy Networking Conferences\nShort Name: PPNUCG2022\nDates: April 29-30\, 2022\nVenue: Dubai\, UAE & Online\nScientific Program: It will only include Plenary speakers\, keynote speakers\, panel discussions and presentations in parallel sessions.\nAudience: Global Leaders\, Industrialists\, Business Delegates\, Students\, Entrepreneurs\, Executives\nEmail: pharmaceuticals@universeconferences.net\nVisit: https://pharmaceuticals.universeconferences.com\nCall for Papers: https://pharmaceuticals.universeconferences.com/submit-abstract/\nRegister here: https://pharmaceuticals.universeconferences.com/registration\nCall/WhatsApp Us: +442033222718 \nTarget Audience: CTOs\, VPs\, Directors\, Senior Managers\, Wholesalers\, Manufacturers\, Scientists\, Doctors\, Chief officers\, Pharmacist\, Professors\, established scholars and emerging ones as well as partners from around the world in an open dialogue to test ideas and to expose research to a wider audience. \nPPNUCG2022-SUPPORTING JOURNALS \nUnified Citation Journals is a platform for the latest discoveries in Technology\, Science\, engineering\, medicine\, medical clinical\, and advancing discoveries and health. We at Unified Citation Journals ensure the advancement of healthcare and improve performance for the benefit of humanity.\nUnified Citation Journals empowers and publishes scientific research work. We will be including special issues and symposia papers in related journals from all over the world. Apart from publishing\, we also promote upcoming books covering different fields of science\, medicine\, engineering\, technology\, etc. Unified Citation Journals help Authors\, Publishers\, and Distributors\, in growing their business multifold.\nMore details: https://ucjournals.com/\nSubmit your e-posters today!\nePoster Community is a medium of electronic presentation of your scientific posters that allow you to present and publish the latest scientific research work of your interest in front of worldwide viewers\, learners\, and open access community. An ePoster is worth a thousand words; it’s self-explanatory – it stands on its own and does most of your explanation digitally. We welcome researchers to submit their posters and make it visible. ePosters can contain many different rich resources such as research work\, case reports\, presentations\, company profiles\, assignments\, images\, trending news\, projects\, summary\, results\, apps\, links\, etc. More details: https://eposters.universeconferences.com/     \n#PharmacyandPharmaceuticalSciences #Anatomy&Pathophysiology #BioinformaticsandBio-materials #Pharmacognosy&Botony #NanotechnologyinPharmacy #Medicinal&BiologicalChemistry #PharmacologicalStudies #InsightsofCancerPharmacology #ClinicalPharmacy #PharmaceuticalCare #PharmaceuticalBiotechnologyandMicrobiology #PharmaceuticalEthics&RegulatoryAffairs #FutureofPharmacy&Pharmacists #TraditionalMedicine #Phytochemistry #PharmaceuticalIndustry #PharmaBusinessManagement #PharmaceuticalConferences #Pharmacology #AnalyticalandBioanalyticaltechniques #Biosimilars #BABEStudies #Toxicology #ClinicalResearch #Clinicalpharmacy #Antibiotics #ForensicResearch #MedicinalChemistry&CADD #Pharmacognosy #Phytochemistry&NaturalProducts #PharmaceuticalRegulatoryAffairs #NovelDrugDeliverySystems #GMP #GCP&QC #NeuropharmacologyConferences #PharmacologyConferences #NeuropharmacoloyConferences2022 #GlobalNeuropharmacologyMeeting #ClinicalNeuropharmacoly \nConnect With Us:\nUrl: https://pharmaceuticals.universeconferences.com\nEmail:pharmaceuticals@universeconferences.net\nTwitter: https://twitter.com/PharmaUcg\nYouTube: https://youtu.be/d4nkqSnsRw8\n\nWordpress: https://pucg2020.wordpress.com/\nYoutube Sharing Link: https://youtu.be/KpgkChkvGxI\n\nPinterest: https://www.pinterest.com/pharmautilitarianconferences/\nTumblr: https://pharma2020.tumblr.com/\nmewe: mewe.com/i/sharondary\nTwitter: https://twitter.com/PharmaConf20\nInstagram: @pucg2020berlin\nCommunity: Utilitarian Conferences Gathering\nReg. No. 12330203\nRegistered at UCG\, 12 Constance Street\, London\, England\, E16 2DQ\, UK\nUtilitarian Conferences Gathering\, Company Reg. No. 12330203 Registered at UCG\, 12 Constance Street\, London\, England\, E16 2DQ\, UK.\nUtilitarian Conferences Gathering offers a wide range of events\, Meetings\, Conferences\, Workshops\, Symposium. We have a dedicated team who are aimed at acquiring the technologies\, adopting the knowledge of business needs and accelerating with best ideas and strategies. Utilitarian Conferences Gathering is a pioneer in the area of Event Management\, Collaboration. We are a full service event provider specializing in the field of Medical\, Clinical\, Healthcare\, Life Sciences\, Engineering\, Pharma\, Environmental Science\, Engineering\, Business\, Agricultural and Food event services for Academic and Industrial Sectors. We stand out distinctively from our competitors for our commitment to quality\, round the clock service and unmatched price. We are able to provide you with the best event\, Meeting experience under one roof. We at Utilitarian Conferences Gathering make sure that you as a client choose the most appropriate event.\nMore Information: https://universeconferences.com/\nTweets by UCGConferences\nFacebook: https://www.facebook.com/utilitarianconferences.gathering.7
URL:https://rarediseases.org/event/11th-ucg-edition-on-pharmaceuticals-pharmacy-networking-conferences/
LOCATION:Holiday Inn Dubai Al Barsha 1\, Sheikh Zayed Road\, Dubai\, UAE\, Dubai\, 00000\, United Arab Emirates
ATTACH;FMTTYPE=image/png:https://rarediseases.org/wp-content/uploads/2021/11/Pharma.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220429T140000
DTEND;TZID=America/New_York:20220429T153000
DTSTAMP:20220526T045619
CREATED:20220401T183035Z
LAST-MODIFIED:20220401T183035Z
UID:84471-1651240800-1651246200@rarediseases.org
SUMMARY:SRNA Online Support Group Meeting
DESCRIPTION:Join the Siegel Rare Neuroimmune Association for an online support group meeting hosted by Kate and Julie\, the Arizona support group leaders on 4/29! Anyone is welcome\, no matter where you are located. If you are an individual diagnosed or a caregiver for someone with ADEM\, AFM\, MOGAD\, NMOSD\, ON\, or TM\, you are invited to join the event. This month\, everyone will be learning about adaptive sports\, with two guest speakers to share the topic. The event will be joined by SRNA community member\, Lincoln Jamison and Ability360’s Gus Lazear. Come connect with others and discuss what it’s like living with a rare neuroimmune disorder. Ask questions\, share your stories\, or just listen – everyone is welcome. Register here: https://wearesrna.org/event/online-support-group-meeting-04-29-2022/
URL:https://rarediseases.org/event/srna-online-support-group-meeting/
LOCATION:IL
ORGANIZER;CN="Siegel%20Rare%20Neuroimmune%20Association":MAILTO:ckrishnan@wearesrna.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220430T130000
DTEND;TZID=America/New_York:20220430T143000
DTSTAMP:20220526T045619
CREATED:20220316T025806Z
LAST-MODIFIED:20220316T025806Z
UID:84329-1651323600-1651329000@rarediseases.org
SUMMARY:Chondrosarcoma Foundation Moving Forward in Diagnosing & Treating Chondrosarcoma Fourth International Virtual Dialogue
DESCRIPTION:The Chondrosarcoma Foundation\, Inc. will host their fourth International Forum / Virtual Dialogue featuring the following prominent experts to address new innovations\, findings\, and technologies to improve the treatment of Chondrosarcoma on Saturday\, April 30\, 2022 at 1:00 PM EST. Register here: https://csfshayna.org/virtual-dialogue4-registration/
URL:https://rarediseases.org/event/chondrosarcoma-foundation-moving-forward-in-diagnosing-treating-chondrosarcoma-fourth-international-virtual-dialogue/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220503T180000
DTEND;TZID=America/New_York:20220503T190000
DTSTAMP:20220526T045619
CREATED:20220502T193027Z
LAST-MODIFIED:20220502T201238Z
UID:84744-1651600800-1651604400@rarediseases.org
SUMMARY:Rare Diseases Speaker’s Event - The Role of Physicians-in-Training on the Future of Rare Disease
DESCRIPTION:Join us on Zoom & register here – https://georgetown.zoom.us/meeting/register/tJ0qd-usqjwtGtKm120lWxC-oYej15Y2D3wg
URL:https://rarediseases.org/event/rare-diseases-speakers-event-the-role-of-physicians-in-training-on-the-future-of-rare-disease/
LOCATION:IL
CATEGORIES:Students for Rare
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220504T123000
DTEND;TZID=America/New_York:20220504T164000
DTSTAMP:20220526T045619
CREATED:20220301T221019Z
LAST-MODIFIED:20220428T144219Z
UID:84117-1651667400-1651682400@rarediseases.org
SUMMARY:Externally-led Patient-Focused Drug Development Meeting (EL-PFDD) for Post-Transplant Lymphoproliferative Disease (PTLD)
DESCRIPTION:Click here to download the meeting agenda.
URL:https://rarediseases.org/event/el-pfdd-ptld/
LOCATION:IL
CATEGORIES:For Patients and Families,Patient Meetings,For Patient Organizations
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220509T080000
DTEND;TZID=America/New_York:20220510T180000
DTSTAMP:20220526T045619
CREATED:20220414T110326Z
LAST-MODIFIED:20220414T110326Z
UID:84515-1652083200-1652205600@rarediseases.org
SUMMARY:11th Emirates Pathology & Digital Pathology Utilitarian Conference
DESCRIPTION:Greetings. On the behalf of Pathology Utilitarian Committee\, we warmly welcome you to the 11th Emirates Pathology & Digital Pathology Utilitarian Conference (11EPUCG2022). The motto of the Pathology Conference –11EPUCG2022: Where pathologists meet innovation & technology for a better outcome.\nOn the occasion of this wonderful event\, we cordially welcome participants from all around the world to join us for an Online Pathology Conference.\nPathology Conference 2022 seeks to bring together professionals\, industrialists\, and students from the pathology research community to share their latest breakthroughs and applications\, as well as engage in interactive discussions and technical seminars. Companies and/or universities will also be able to offer their services\, products\, innovations\, and research findings during the Conferences.\nWe have an exciting and informative program at the Pathology Congress that will allow the participants to reflect upon and celebrate our accomplishments\, renew collaboration and extend their networking\, and to investigate current and future research in a particular direction.\nPathology Conference Program will encourage discussions and hope to inspire members from a wide array of themes to initiate networking and collaboration within and across disciplines for the advancement of the Pathology field. 11EPUCG2022 will be a great conference for sharing the latest insights of both academic and industrial research.\nThe objective of this unique Digital Pathology conference is to promote the highest standards of pathology in management. The Conference aims to equip young research talents with knowledge about recent developments\, advance the effectiveness of pathology.\nDon’t miss this opportunity to be inspired by joining colleagues from all over Europe\, the USA\, UAE\, Middle East\, and Asia to update yourself\, to network.\nSave the dates\, May 9-10\, 2022. Start preparing your abstracts\, poster and don’t forget to tell your colleagues – this is going to be the best Pathologists conference ever!\nWe hope that you will have a productive and fun-filled time at the 11th Emirates Pathology & Digital Pathology Utilitarian Conference.\nOur best regards\,\nUCGConference OCM\nConference highlights are Pathology | Digital Pathology | Breast Pathology | Pediatric Pathology | Histopathology | Cancer Cytopathology | Diagnostics Pathology | Surgical Pathology | Ophthalmic Pathology| Renal Pathology And Urinary Tract Pathology | Anatomical Pathology\, Forensic Pathology\, Autopsy Pathology | Hematopathology | Gynaecological Pathology & Uropathology | Liver Pathology And Gastrointestinal Pathology | Molecular Pathology | Head And Neck Pathology | Neuropathology | Nephropathology | Immunopathology | Microbial Pathology & Infectious Disease Pathology | Dermatopathology | Soft Tissue And Bone Pathology | Speech-Language Pathology | Clinical Pathology & Chemical Pathology | Oral & Maxillofacial Pathology | Experimental Pathology | Coronavirus Pathogenesis | Pathology with Technology\nEPUCG- SUPPORTING JOURNALS\nUnified Citation Journals is a platform for the latest discoveries in Technology\, Science\, engineering\, medicine\, medical clinical\, and advancing discoveries and health. We at Unified Citation Journals ensure the advancement of healthcare and improve performance for the benefit of humanity.\nLearn More: https://ucjournals.com/  \nePoster Community is a medium of electronic presentation of your scientific posters that allow you to present and publish the latest scientific research work of your interest in front of worldwide viewers\, learners\, and open access community. An ePoster is worth a thousand words; it’s self-explanatory – it stands on its own and does most of your explanation digitally. We welcome researchers to submit their posters and make it visible. ePosters can contain many different rich resources such as research work\, case reports\, presentations\, company profiles\, assignments\, images\, trending news\, projects\, summary\, results\, apps\, links\, etc. More details: https://eposters.universeconferences.com/\nConference Benefits \n15 CME Hours\n15 CPD Hours\nLive Sessions\nOne on One meet with Experts and Investors on Demand\nA showcase of new Products\nCertification of Recognition\nIndustrial Exhibitions\nMeet your Academic idols\nHear about the latest research\nEngage in High-level debates & Q/A\nNetworking for future collaboration\nPublication of abstracts on our Website\nAdd Research Value\nEmployment Bureau\nNetworking Sessions \nImportant Information:\nConference Name: 11th Emirates Pathology & Digital Pathology Utilitarian Conference\nShort Name: 11EPUCG2022\nDates May 9-10\, 2022\nVenue: Online\nScientific Program: It will only include plenary speakers\, keynote speakers\, panel discussions and presentations in parallel sessions.\nAudience: Global Leaders\, Industrialists\, Business Delegates\, Students\, Entrepreneurs\, Executives\nEmail: pathology@universeconferences.com\nVisit: https://pathology.universeconferences.com/\nPathology Experts:https://pathology.universeconferences.com/pathology-experts/\nCall for Papers: https://pathology.universeconferences.com/submit-abstract/\nRegister here: https://pathology.universeconferences.com/registration/\nCall Us: +12076890407\nWhatsApp Us: +4420332227110 \nConnect With Us:\nUrl: https://pathology.universeconferences.com/\nEmail: pathology@universeconferences.com\nTwitter: https://twitter.com/EPUCGCongress\nLinkedIn: www.linkedin.com/in/pathologyucgconferences\nFacebook Page:https://www.facebook.com/EPUCGConferences\nFacebook: https://www.facebook.com/pathologyconferences/\nInstagram: https://www.instagram.com/epucgconferences/\nPinterest: https://www.pinterest.de/EPUCG2020Dubai/\nTumblr: https://epucg2020dubai.tumblr.com/\nYoutube: https://www.youtube.com/channel/UCS1TFe3nzRlREovQIjYMPkg \nTarget Audience: Pathologists\, Neurologist\, Surgeons\, Cytopathologists\, Clinical and academic dermatologists\, residents\, fellows\, and mid-level providers and other allied healthcare providers and students with a special interest in dermatology. Dermatopathologists\, Gynecologists\, Lecturers. CTOs\, VPs\, Directors\, Senior Managers\, Scientists\, Doctors\, Chief officers\, Professors\, Anatomic Pathologist\, Product Managers\nCommunity: Utilitarian Conferences Gathering\nReg. No. 12330203\nRegistered at UCG\, 12 Constance Street\, London\, England\, E16 2DQ\, UK\nUtilitarian Conferences Gathering offers a wide range of events\, Meetings\, Conferences\, Workshops\, symposiums. We have a dedicated team who are aimed at acquiring the technologies\, adopting the knowledge of business needs\, and accelerate with the best ideas and strategies. Utilitarian Conferences Gathering is a pioneer in the area of Event Management\, Collaboration. We are a full-service event provider specializing in the field of Medical\, Clinical\, Healthcare\, Life Sciences\, Engineering\, Pharma\, Environmental Science\, Engineering\, Business\, Agricultural\, and Food event services for Academic and Industrial Sectors. We stand out distinctively from our competitors for our commitment to quality\, round-the-clock service\, and unmatched price. We are able to provide you with the best event\, Meeting experience under one roof. We at Utilitarian Conferences Gathering make sure that you as a client choose the most appropriate event.\nMore Information: https://universeconferences.com/\nLinkedIn: https://www.linkedin.com/company/ucg-utilitarian-conferences-gathering/\nE: contact@universeconferences.net\nTweets by UCGConferences\nFacebook: https://www.facebook.com/Utilitarian-Conferences-Gathering-102364354933420
URL:https://rarediseases.org/event/11th-emirates-pathology-digital-pathology-utilitarian-conference/
LOCATION:online\, 12 Constance Street\, London\, England\, E16 2DQ\, United Kingdom
CATEGORIES:Rare Disease Day
ATTACH;FMTTYPE=image/png:https://rarediseases.org/wp-content/uploads/2022/04/Emirates-Pathology-Digital-Pathology-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220522T140000
DTEND;TZID=America/New_York:20220522T160000
DTSTAMP:20220526T045619
CREATED:20220409T231706Z
LAST-MODIFIED:20220409T231706Z
UID:84549-1653228000-1653235200@rarediseases.org
SUMMARY:IPPF South Florida Virtual Support Group Meeting
DESCRIPTION:Join IPPF’s South Florida virtual support group meeting on 5/22 to connect with other patients and caregivers in South Florida living with pemphigus or pemphigoid. There’s something special about connecting with people who really understand what you’re going through. You are not alone! Register here: https://fundraise.pemphigus.org/event/2022-may-virtual-south-florida-support-group/e401335
URL:https://rarediseases.org/event/ippf-south-florida-virtual-support-group-meeting/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220524T123000
DTEND;TZID=America/New_York:20220524T143000
DTSTAMP:20220526T045619
CREATED:20220427T153257Z
LAST-MODIFIED:20220427T153333Z
UID:84675-1653395400-1653402600@rarediseases.org
SUMMARY:RDI Informal Side Event: Networking Experts\, Centers of Expertise\, And Patient Organizations To Strengthen Health Systems For Rare Diseases
DESCRIPTION:This informal side-event to the World Health Assembly aims to explore how national healthcare systems can be strengthened to better support PLWRD and help achieve existing international commitments. Participants will discuss how networking experts\, centers of expertise\, and patient organizations can help foster national and global “health systems strengthening.” \nThe event will present proposals for strengthening healthcare systems for PLWRD\, with an in-depth look at the creation of a Global Rare Diseases Network. The event will start by sharing an operational description of rare diseases\, followed by presenting and discussing five proposals on global networking to strengthen health systems. Finally\, a panel of experts will detail\, from different perspectives\, the added-value of networking care globally\, to establish a bottom-up approach in strengthening healthcare systems for rare diseases. \nRegistration Link: https://bit.ly/3rWMTDv
URL:https://rarediseases.org/event/rdi-informal-side-event-networking-experts-centers-of-expertise-and-patient-organizations-to-strengthen-health-systems-for-rare-diseases/
LOCATION:IL
CATEGORIES:For Patient Organizations,For Clinicians and Researchers,Industry Events
END:VEVENT
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