May 24, 2022
TOPIC: Uncategorized, Press Releases, Featured News, Advocacy, RDACs
Connecticut Establishes a Permanent Rare Disease Advisory Council
Posted at May 5, 2022 04:07 pm by Valaree DonFrancesco
May 24, Hartford, CT – Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions to establish a permanent Rare Disease Advisory Council (RDAC) in the state of Connecticut. Connecticut established a temporary rare disease task force in 2017 that concluded its work in 2019, but the Rare Disease Advisory Council created as part of HB… Read More